ADDITIONAL RESOURCES
Legislative Considerations and Existing Laws
European Society of Human Genetics.
This report outlines the polices, guidelines and legislation dealing with genetic screening and testing in western European countries as well as general principles for screening developed by international councils. The report calls for the development of an interconnected comprehensive screening system in Europe similar to the U.S. national screening policy advocated by the American Academy of Pediatrics.
U.S. Department of Health and Human Services.
Presents current information about genetic testing designed for government officials considering legal policy on this issue.
Health insurance in the age of genetics
Department of Health and Human Services. National Human Genome Research Institute. July 1997.
An article concerning how progress in genetic research and testing may require legislation to prevent genetic discrimination by health insurance companies.
Her Majesty's Stationery Office
Searchable database for legislation in the United Kingdom. Includes the Cabinet office, the U.K. Parliament, the Scottish Parliament, the National Assembly for Wales and the New Northern Ireland.
Law Librarians' Society Legislative Source Book
An excellent well-maintained resource for U.S. state legislatures, state laws and state regulations. Contains website links for each state as well as phone numbers and other state government links. On most state legislature websites the laws, codes and regulations are searchable.
Secretary's Advisory Committee on Genetic Testing (SACGT)
The SACGT advises the U.S. government about all aspects of the development and use of genetic tests, including the complex medical, ethical, legal, and social issues raised by genetic testing. Contains useful documents produced by this committee.
A useful resource for U.S. legislative information on the Internet, developed by the Library of Congress. Houses several searchable databases for bills currently being considered as well as laws that have been passed.
