What is NF1?

Around the world, one in every 3,500 people is born with the genetic disorder NF1, which stands for "Neurofibromatosis Type 1."

Say It!
neuro. fibroma. tosis.

NF1 is a disorder of the nervous system that is caused by mutations in a gene of the same name, NF1. We all have this gene, but we only get the disorder if the gene is mutated.


Funding provided by The Children's Tumor Foundation, formerly The National Neurofibromatosis Foundation.

Additional Resources

The Children's Tumor Foundation spearheads patient support, public education and fundraising efforts. Their extensive Web site presents news, information and resources to help those affected by NF.

What you can do