ADDITIONAL RESOURCES

The Latest News on Gene Therapy Research

• The Washington Post's coverage on Gene Therapy (free registration required)

General Information about Gene Therapy Research

• The Human Genome Project Information
• The American Medical Association

Regulation of Gene Therapy Research

• Human Gene Therapy and the Role of the FDA
• The Recombinant DNA Advisory Committee (RAC) at the NIH

Positions on Gene Therapy Research

• Gene Transfer from The Genetics and Public Policy Center; also click on Genetic Enhancement
• The American Society of Human Genetics Statement on Gene Therapy

The Jesse Gelsinger Story

• The Biotech Death of Jesse Gelsinger by Sheryl Gay Stolberg. Published in The New York Times Magazine, November 28, 1999.
• The Gelsinger Case, archived articles from The Washington Post (free registration required).
• Gene Therapy Setback, from the February 2000 issue of Scientific American.

Severe Combined Immune Deficiency

• More information from the KidsHealth website funded by the Nemours Foundation.
• New cancer case halts US gene therapy trials, by Natasha McDowell from the New Scientist, January 15, 2003 (also see Related Stories links to more articles)

Gene Therapy for Adenosime Deaminase (ADA) Deficiency:

• Description of ADA deficiency, in Online Mendelian Inheritance in Man (technical)
• ADA: The First Gene Therapy Trial, from the National Institutes of Health.
• Follow-up study results in the journal Blood (technical, requires subscription) (PDF)

Issues and Ethics

• Human Gene Therapy Scope Note from the Kennedy Institute of Ethics at Georgetown University; has an extensive, annotated list of resources and links

Supported by a Science Education Partnership Award (SEPA) [No. 1 R25 RR16291-01] from the National Center for Research Resources, a component of the National Institutes of Health, Department of Health and Human Services. The contents provided here are solely the responsibility of the authors and do not necessarily represent the official views of NCRR or NIH.